Affiliations - Neev Kolte & Brave Ronil Foundation

DDRFA

DDRFA is a leading not-for-profit alliance of over 60 separate foundations and funds dedicated to the research and advocacy of Diffuse Intrinsic Pontine Glioma (DIPG) and Diffuse Midline Glioma (DMG).

DDRFA makes grants together for research, trial access, and data integration or utilization. We are passionate about providing funds to develop an understanding of Diffuse Midline Gliomas, including Diffuse Intrinsic Pontine Gliomas. GDRFA has funded $1.1 Million together for DIPG DMG research, data, trials, and the national tumor board formation.

ARFA's goal is to fund research, access to treatments, prevention, diagnostics, and better use of data in DIPG/DMG with the hope to help committed researchers and doctors by funding the cure for this most deadly childhood brain tumor.

ACS CAN

American Cancer Society - Cancer Action Network is a team of volunteers and staff that have a significant impact on helping patients with cancer and the volunteers are mostly who have been impacted by cancer who rally together to demand change from elected officials.

Dragon Master

The Dragon Master Initiative is a platform that helps solve the riddle of cancer through streamlined data sharing between researchers and institutions.

The Dragon Master Initiative seeks to expand CAVATICA, a free research tool that enables doctors and scientists to instantly share, search and analyze patient data. Expanding this tool will allow researchers to use big data to identify patterns and further their research to uncover cures for cancer more quickly.

Through CAVATICA, real-time feedback is shared, allowing researchers to modify the trials as we move forward instead of waiting for the results. This platform provides researchers with the ability to find out what works and fails, faster. This initiative also connects patients and their families with the resources they need to help them get through the journey with as much support as possible.

ACCO

The American Childhood Cancer Organization (ACCO) is a non-profit organization dedicated to supporting children and adolescents who are affected by childhood cancer, as well as their families. ACCO's mission is to improve the lives of these young cancer patients through advocacy, awareness campaigns, and providing various forms of assistance and resources. They work tirelessly to advance research efforts for childhood cancer, promote access to quality medical care, and support families emotionally and financially during their cancer journey.

Arms Wide Open

Arms Wide Open Childhood Cancer Foundation’s mission is to fund less toxic therapies for children with cancer so they can have a better quality of life as they battle the disease and to give children battling cancer and their families hope during the most difficult days of their lives.
●8 Emmy® Awards for The Truth 365 Documentaries and short films.
●Hosts CureFest, an annual event in Washington, DC, to help spread awareness and unify the childhood cancer community. In 2022, over 250 childhood cancer foundations and groups were represented.
●Truth 365 videos have been viewed over 500 million times in several dozen countries.

MPF

The Mithil Prasad Foundation (MPF) is a non-profit organization dedicated to supporting DIPG research and patients. It was formed in honor of Mithil Prasad, who fought a fierce battle against DIPG after his diagnosis in 2015. During his fight, Mithil always told his family how they should help kids just like him1.

The foundation’s mission is to support DIPG researchers and patients, and it is made possible by generous donations. The foundation plans and organizes various fundraising events and information sessions throughout the year. It also allocates some of its funds to help families who may need financial assistance to provide a better quality of life for their DIPG patients. The foundation was started by Mithil’s family - mom Sarva Channarajurs, dad Prasad Rao, and sister Rachna Prasad - with Mithil’s spirit in their hearts.

Relief From Cancer

Relief From Cancer provides direct funding to patient families for:
●Diagnostics
●Hospitalization
●Chemotherapy & treatment
●Second opinions from distinguished oncologists
●Psychological services
●Residential & Transportation Needs
●Palliative Care
●Bereavement support
●Advocate for patients' rights to access good medical and palliative care
●Increase Awareness to increase government funding to assist cancer patients and their families, help conduct cancer screening camps and support medical professionals who provide education for cancer and palliative care.

BCH UCSF

Benioff Children's Hospital UCSF, officially known as UCSF Benioff Children's Hospital, is a renowned pediatric medical center located in San Francisco, California. As part of the University of California, San Francisco (UCSF) health system, the hospital is dedicated to providing comprehensive and advanced medical care to infants, children, and adolescents. It offers a wide range of specialized services and programs, including pediatric surgery, oncology, cardiology, neurology, and other subspecialties. The hospital is committed to cutting-edge research, education, and advocacy to improve the health and well-being of children and families, making it one of the leading institutions for pediatric healthcare in the United States.

CAC2

Coalition Against Childhood Cancer (CAC2) is a collaborative network of nonprofits, corporations, and individuals from 39 states and nine countries, supporting and serving the childhood cancer community. CAC2 members effectively advance a variety of childhood cancer causes by unifying their efforts.
●Advocacy - As advocates, we harness our collective strength to push for more effective, less toxic treatments and to broaden and deepen support for our community.
●Awareness - Awareness efforts alert the public to the magnitude of problems faced by children and teenagers with cancer and those who survive their cancers.
●Research & Treatment - Member-funded research drives the search for better treatments, minimizing side effects, increasing quality of life, and finding cures.
●Family Support - Sharing best practices and coordinating action helps better support the patients, families, and caregivers of childhood and teenage cancer.
●Survivorship - Addressing the educational, financial, physical, and psychosocial late effects that childhood and teenage cancer survivors face.
●Promote coordinated action and broad-based collaboration among their members and provide them with a variety of ways to learn from experts and from each other within each pillar.

California Dialog On Cancer

The California Dialogue on Cancer (CDOC) is a coalition established by California's Comprehensive Cancer Control Program in 2002. It serves as the vehicle for comprehensive cancer control in California. CDOC is made up of representatives from a variety of organizations, constituencies, and interest areas in cancer prevention and control, including state and local governments, private and nonprofit organizations, health, medical, and business communities, academic institutions, researchers, cancer survivors, caregivers, and advocates. CDOC is administered by the California Department of Public Health and funded by the Centers for Disease Control and Prevention (CDC).

Peer Reviewer for CDMRP (Dept of Defence)

The Congressionally Directed Medical Research Programs (CDMRP) is a program within the Department of Defense that funds medical research in various areas, including cancer, traumatic brain injury, and other health-related fields. Peer reviewers play a crucial role in the CDMRP grant application process. As a CDMRP peer reviewer, the primary responsibility is to evaluate grant applications submitted to the program, to assess the scientific quality, innovation, feasibility, and potential impact of each proposal. Reviewers participate in panel discussions to reach a consensus on the scores and rankings of the grant applications.
Being a CDMRP peer reviewer is a significant responsibility that requires a commitment to advancing medical research, maintaining objectivity, and upholding the program's integrity. It can be a rewarding experience for individuals who want to contribute their expertise to the evaluation and funding of important research projects.