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    Latest Updates

    White House 2022

Neev’s mom Misha was invited to attend the Cancer Moonshot Childhood Cancer Forum on Friday, September 23, 2022. This significant event united patients, caretakers, oncologists, and administration officials to discuss progress on key initiatives in childhood cancer. The forum served as a platform for the community to express their concerns and learn about advancements in data sharing, drug development, research, and patient navigation. President Biden and First Lady Jill Biden emphasized their commitment to driving meaningful change in tackling childhood cancer, highlighting the importance of collective efforts in this fight.

    Los Angeles American Cancer Society Cancer Action Network - (LA ACS CAN)

Our foundation board members are ambassadors of the American Cancer Society and we participated in the 2023 Annual ACS CAN Ambassador Summit held in Los Angeles, CA. The summit aimed to develop advocacy skills and cultivate teamwork among all volunteers. The summit helped our board members identify ways to connect with local volunteers and also reach out to state legislators and senators regarding pressing childhood cancer issues.

    California State Capitol

We represented our district in California for ACS CAN Cancer Action Day on April 11, 2023, and met with California senators Aisha Wahab and Legislator Alex Lee and asked them to garnish their support for the resolution declaring September as Childhood Cancer Awareness Month in California.

    Alliance for childhood cancer

Proud to join the Alliance for Childhood Cancer for #ActionDay2023 to urge my members of Congress to do their part for kids with cancer by fully funding the Childhood Cancer STAR Act, the most comprehensive childhood cancer bill in history. Sharing our story with members of Congress ensured the voice of children with cancer was heard loud and clear!

    White House 2023

  • In recognition of Brain Cancer Awareness Month, the White House Cancer Moonshot convened leaders from the brain cancer community, including patients, caregivers, oncologists, researchers, advocacy organizations, philanthropy, and industry for a Brain Cancers Forum on May 24, 2023
  • We can proudly say that we were invited to the White House to be part of this milestone event and share stories of our kids and suggest ways to fund and foster research in the field of DIPG.

    Resolution and Proclamations

Spearheaded the efforts to declare September as Childhood Cancer Awareness Month in California by teaming up with American Childhood Cancer Organization and California State Senator Susan Rubio. Proud to say that we helped introduce and pass this resolution in the California Senate. Our foundation also worked with about 30 cities in the Bay Area and they have proclaimed September as Childhood Cancer Awareness Month in 2023 and more than 100 cities across California in 2024!

    American Society of Clinical Oncology

  • We are incredibly honored and proud to share that we’ve been invited to attend the American Society of Clinical Oncology (ASCO) Annual Meeting as part of the Neev Kolte & Brave Ronil Foundation as a patient advocate! This prestigious event brings together the brightest minds in oncology from around the world to share groundbreaking research, innovative treatments, and the latest advancements in cancer care.
  • Being part of this gathering representing NKBR is a huge milestone in our journey, and we can't wait to learn, network, and contribute to the future of cancer treatment. 🌟Here's to making a difference in the fight against cancer!.

    California Comprehensive Cancer Control Program (CCCP)

  • We are thrilled and honored to share that the Neev Kolte & Brave Ronil Foundation (NKBR) has been chosen to be on the Board of Directors for the California Comprehensive Cancer Control Program (CCCP)! This prestigious appointment allows us to play a pivotal role in shaping cancer control strategies and initiatives across the state. One of our key goals as part of the board is to address the current lack of specific resources for childhood cancer in the California Cancer Control Plan. We are committed to advocating for and implementing targeted support and resources for children battling cancer and their families.
  • Being part of this incredible organization aligns perfectly with our mission to support cancer prevention, research, and patient care. We are excited to collaborate with fellow board members and stakeholders to make a meaningful impact in the fight against cancer.

    Coalition Against Childhood Cancer

  • We are incredibly privileged to announce that the Neev Kolte & Brave Ronil Foundation (NKBR) has been selected to serve on the Board of Directors for the Coalition Against Childhood Cancer (CAC2)! This is a monumental opportunity for us to contribute to the collective effort in fighting childhood cancer.
  • As a member of the board, we are committed to advocating for improved resources, supporting vital research initiatives, and providing invaluable assistance to children and families affected by this disease. Our dedication to this cause has never been stronger, and we are ready to make a meaningful impact alongside our fellow board members..

    Cancer Help Desk

  • We are thrilled to announce that the Neev Kolte & Brave Ronil Foundation, has been appointed to the new Technology Advisory Team at Cancer Help Desk. This exceptional team, led by Feroz Mohummed from Lenovo and including other industry leaders, is set to revolutionize support for cancer patients and caregivers through innovative technology and patient-centric frameworks.
  • The team’s dedication and expertise will be invaluable in driving forward the mission to deliver top-notch support, resources, and education for those in need.